Comfort-focused care — what it includes and when it begins

Hospice is a coordinated approach to care that prioritizes comfort, dignity, and quality of life when a serious illness has progressed to a point where curative treatment is no longer the focus. It is not a place — it is a philosophy of care that can be delivered wherever a person calls home.

At Home

Hospice in a home setting

Most hospice care in Maine is delivered in the home — a family residence, apartment, or the home of a family caregiver. A care team visits regularly.

  • Skilled nursing visits, typically several times per week
  • Home health aide support for personal care
  • Medical equipment delivered to the home
  • Medications for comfort provided and managed
  • On-call clinical team available around the clock
  • Social work and chaplain support as needed
Facility-Based

Hospice in a care facility or inpatient unit

Hospice services may also be provided in assisted living, nursing facilities, or dedicated inpatient hospice units when home is not a safe or feasible setting.

  • Hospice team coordinates with facility staff
  • Inpatient admission for intensive symptom management
  • Short-term respite care available for family caregivers
  • Available at some Maine hospitals and hospice facilities
  • Inpatient availability varies significantly by region
  • Most common in southern and central Maine

How hospice care is typically funded in Maine

The large majority of hospice care in Maine is covered through the Medicare Hospice Benefit. Understanding how this benefit works helps families access care without delay or confusion about cost.

What Medicare covers

Medicare Part A covers hospice when a physician certifies that life expectancy is six months or less if the illness runs its expected course, and the individual chooses comfort-focused care rather than curative treatment.

Covered services include: skilled nursing visits, medications related to the terminal diagnosis, medical equipment and supplies, home health aide services, social work counseling, chaplain support, and bereavement services for the family after death. There is generally no cost-sharing for these services under the Medicare Hospice Benefit.

Individuals may leave hospice and return to curative treatment at any time. The six-month prognosis is a certification requirement, not a prediction or a deadline. Many people live longer than expected while on hospice care.

MaineCare (Maine's Medicaid program) also covers hospice services for eligible individuals. Private insurance coverage varies — contact the hospice provider directly to verify benefits before enrollment.

Signs that hospice may be appropriate

These transitions are often guided by physicians, hospital discharge planners, or palliative care teams. Families commonly begin exploring hospice when:

  • A physician has raised the question of goals of care or a shift to comfort-focused treatment
  • Hospitalizations are increasing and the individual has expressed a wish to remain at home
  • Serious illness is progressing and symptom burden is increasing despite treatment
  • The individual or family wants to understand what hospice involves before a decision is made
  • An advance directive or healthcare proxy expresses comfort-focused preferences
  • Caregiver strain is high and additional support — including respite — is needed
  • Death is anticipated within weeks or months and the family wants coordinated support in place
Families are encouraged to ask questions early. Hospice agencies welcome calls from families exploring options before a formal referral is made. Many families report wishing they had called sooner.

What families across Maine should know

The hospice landscape in Maine

Maine has a mix of nonprofit community-based hospices, hospital-affiliated programs, and larger regional organizations. Some serve a single county; others cover multiple regions. The staffing model, visit frequency, and inpatient availability vary considerably by organization and geography.

In rural areas — including Aroostook County, Washington County, Piscataquis County, and the western mountains — hospice availability may be more limited and service areas correspondingly larger. Families in these regions should ask specifically about average visit frequency, response times, and after-hours coverage when evaluating providers.

Inpatient hospice — where a patient is admitted to a facility for intensive symptom management or when home care is not feasible — is more available in southern and central Maine. Families in rural regions should ask providers about inpatient options and transfer arrangements if that level of care becomes needed.

The Maine Hospice Council supports hospice and palliative care statewide and may be a useful resource for families navigating these decisions.

Hospice providers operate independently. Eligibility criteria, service area, staffing, and current capacity vary. Contact providers directly to confirm availability and referral requirements. Inclusion in this Registry does not imply endorsement or recommendation.